by Designer Lori Esterly

Posts tagged ‘Keith’

The Saga of Keith

Hi Everyone,

Well, I have to swallow my pride a little bit here and admit a mistake that I told you.  Last week I said that all funding to special needs individuals was cut.  That is not completely accurate.  All Wavier funding was cut, which of course is where Keith is.  So to Gov. Corbett, I am sorry for exaggerating the funding situation but I still feel that cutting the funding to those who can’t care or provide for themselves is wrong.

So, the good news is that we had a meeting with our Social Worker, J, who is the absolute best support services coordinator in the whole world, in my opinion.  She came to our house during her personal vacation time to fill out paperwork for new funding for Keith through Base Funding which is a different funding stream than Wavier.  We should know by this time next week if Keith has funding or not.

Please pray with me that this goes through so that Keith can go back to work.  I like being with Keith but being together 24/7/365 is too much for both of us.  Thank you.

On another great note, Keith made these two bracelets this week.  Pictures below.  I am waiting on puzzle charms for the bracelets to post them on my Etsy site.  They should be in next week. I am so proud of him for all his good work.  I am going to have to stock up on supplies so Keith has enough to work with. : )    We plan on donating  10% of the proceeds to Support Autism for every item that Keith makes.  If you are interested in knowing more about Autism check out these websites.

The Autism Society – http://www.autism-society.org/

Autism Speaks – http://www.autismspeaks.org/

The Autism Foundation – http://www.thecenterforautism.org/autismfoundation

There is no conclusive evidence for a cause for Autism.  But in this mother’s opinion I believe that there is a genetic factor involved with some sort of predisposition that if all the right factors line up right, bingo, you have autism.  I do believe that there is an ecological or diet related factor as well.  What we do know is that Autism is neurological and often accompanied with Mental Retardation and even seizure disorders, like Keith.  Autism affects multiple areas of the brain’s function two specifically called the amygdala and cerebellum.  They effect emotions/understanding emotions and muscle control including muscles of speech respectively.  There are lots more interesting facts about Autism on Wikipedia at http://en.wikipedia.org/wiki/Autism.

I could go on and on but I won’t take anymore of your valuable time with it today.

Don’t forget the pictures!

Yes, I set up the pattern for this one and put the clasps on, but it was his first one and he completed the pattern and strung it independently. Beautiful!?!

This is Keith’s second bracelet. Yes, I put the clasps on but all I did showed him was one shiny bead then one frosted bead. He did the rest. I’m so Proud!

After Graduation

Whew,

It has been a whirlwind week!  Friends and Family came in from out-of-town and joined us at graduation on Wednesday.  I think I am still in shock.  I made as much preparation as I could and everything went great but Wow, it was here and gone so fast I hardly had a moment to relish it.

As any parent, I am so proud of Keith!  He has worked hard and done a great job!  All of this makes me think of times past, of things accomplished, even some regrets.  But I have to lay all of those aside and look to the future now.  Keith has a bright future ahead of him indeed.  I just got an email from work services with the name of Keith’s job coach, JD.  We are really looking forward to meeting him and starting this new adventure into adulthood together.

I just stop and think of the day and all of the smiles and encouragement and even some tears, all of the well wishes and further encouragement from teachers and friends.  It was a wonderful day indeed.  Just for those of you who know me it was only a two tissue day.  That was really good for me!  For the rest of you, I am a big crier and I carry my own box of tissues to events like this and sometimes I use the whole box.  Yes, I know it is pitiful.  But as I said it was a very good day.  The hard part is not to see those folks who have been such an integral part of Keith’s life for 12 years.  They have been such an encouragement to me over the years.  So, a HUGE Thank you goes out to Centennial School of Lehigh University and to Dr. George and all the staff and ESPECIALLY THE TEACHERS!  We Love you all!  Thank you all from the bottom of my heart!  I could never thank you enough.  You make a big difference in the lives of young people and families.  May the Lord continue to bless the work of Centennial School.

Keith and some of his teachers over the years.

Thank you!

~ Lori

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